tag:blogger.com,1999:blog-7668050648919046122.post1692357458082858131..comments2023-10-20T07:13:22.206-04:00Comments on Waiting for Happy: 10 Months of Hopeboltefamilyhttp://www.blogger.com/profile/09178547489939649432noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-7668050648919046122.post-63257309144187093402010-04-11T00:19:54.237-04:002010-04-11T00:19:54.237-04:00Aww! Cute photos! I love the Birthday Lamb! :PAww! Cute photos! I love the Birthday Lamb! :PHollyhttps://www.blogger.com/profile/09830340190187420600noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-1096042609378450992010-04-10T11:54:44.227-04:002010-04-10T11:54:44.227-04:00I prayed for your baby soon after she was born but...I prayed for your baby soon after she was born but lost track of your blog and wondered how things were going with her.<br /><br />I am amazed at how well Hope is doing now and praise God for her healing.<br /><br />I can relate to some extent to the guilt you feel at having a healthy girl after such a scary diagnosis. At 5 months old, my now 15-month-old daughter was diagnosed with a very serious form of epilepsy that is devastating to development and can mean a lifetime of uncontrolled seizures and a multitude of other problems. She has beaten the odds and has been seizure-free for more than nine months. She is delayed but is making regular progress and I have great hope that she will catch up with her peers. I don't know why she responded to treatment where other children with the same disorder have not. It makes me praise Jesus, that much I know. <br /><br />When I think of my new-found friends whose children are still battling the seizure monster, I try to turn the guilt I feel into action and advocate for more research and early recognition of the signs and symptoms to shorten the time between onset and treatment. And I pray. I pray for healing, pray for peace, pray for wisdom, pray for strength.<br /><br />Remember that the "good stories" can give those who are still in the trenches reason to hope even when the statistics are grim.Meganhttps://www.blogger.com/profile/02906755193444437549noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-63166877830821579702010-04-08T11:05:29.002-04:002010-04-08T11:05:29.002-04:00Oh I love that spiky pony!Oh I love that spiky pony!Mama Ehttps://www.blogger.com/profile/02851555780578715423noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-39688731828771471132010-04-05T23:44:45.899-04:002010-04-05T23:44:45.899-04:00Very sweet little girl - God has truly blessed you...Very sweet little girl - God has truly blessed you.<br /><br />Love to you<br />Kelly<br />http://www.ivebecomemymother.comKelly Lhttps://www.blogger.com/profile/02990072727974408086noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-47778207921474497492010-04-03T23:04:29.402-04:002010-04-03T23:04:29.402-04:00Too funny you mentioned the disclaimer, cuz I was ...Too funny you mentioned the disclaimer, cuz I was going to mention that she looked like she could totally fall right out!! COngrats on all the good news about her!!!Juliehttps://www.blogger.com/profile/04397746059542551997noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-65745407174314226012010-04-03T21:50:29.619-04:002010-04-03T21:50:29.619-04:00Love this! It's fun to get Hope's "pe...Love this! It's fun to get Hope's "perspective" on her day. She is beautiful and blessed! Praise the LORD!!LeeAnnhttps://www.blogger.com/profile/16496562692330108460noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-38596765784753755372010-04-03T14:42:29.185-04:002010-04-03T14:42:29.185-04:00Happy 10 months Hope!!!
What a big girl!!! And doi...Happy 10 months Hope!!!<br />What a big girl!!! And doing so much!<br />Hope is the sweetest Princess!<br />Have a wonderful Easter.Stephaniehttps://www.blogger.com/profile/10792117187001612101noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-67220186113387535482010-04-02T13:27:42.886-04:002010-04-02T13:27:42.886-04:00ADORABLE! Such a happy little girl! Hey, no more...ADORABLE! Such a happy little girl! Hey, no more disclaimers on your own blog. If people wanna complain, then they can go somewhere else. :)asplashofsunshinehttps://www.blogger.com/profile/13233116341478208473noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-56143973016050975172010-04-02T10:44:28.479-04:002010-04-02T10:44:28.479-04:00Oh Kristy, what a blessing and miracle our Hope ha...Oh Kristy, what a blessing and miracle our Hope has been these past ten months. She is just so adorable and precious and such an answer to prayers. I sure wish I could reach through the screen and give her a hug and kisses. Enjoy each blessing and on this Good Friday, Jesus paid it all, once and for all, for us. Amazing love. I love you girl.<br /><br />Love and Hugs, LaurieLaurie in Ca.https://www.blogger.com/profile/15599832324966859946noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-12368189257513561342010-04-01T23:39:37.971-04:002010-04-01T23:39:37.971-04:00She is beautiful. Thanks for your insightful post...She is beautiful. Thanks for your insightful posts. <br /><br />She looks so big now...you'll have to lower the mattress in her crib...I am paranoid because my son lost his life in his crib. Not by falling out, but I guess I am just sensitive to safety in the crib now. <br /><br />Thanks for bearing with me and my paranoia lol!<br /><br /><br />With love and hope,<br />CherylCherylhttps://www.blogger.com/profile/09995656964857816898noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-63044716780394170852010-04-01T23:27:15.869-04:002010-04-01T23:27:15.869-04:00I am so glad she is doing well. I can understand ...I am so glad she is doing well. I can understand what you are saying about the other EB families as I follow some of them and it is very sad. I am happy that you do not have to share that grief for now or maybe ever. I love how she smiles in her photos. She is beautiful. My prayers are with you and your grief and with your family.Aliciahttps://www.blogger.com/profile/11090129098020693260noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-62633546490989695672010-04-01T23:21:09.375-04:002010-04-01T23:21:09.375-04:00I hope she is OKI hope she is OKAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-21127117832677916912010-04-01T22:46:25.624-04:002010-04-01T22:46:25.624-04:00Rejoicing with you on the healthy beautiful little...Rejoicing with you on the healthy beautiful little darling that you hold in your arms. She is gorgeous, and that smile is just infectious!!! Praying that she continues to have "no issues" with her EB, and that she continues to thrive. <br /> Happy 10months Hope!!!Mommato4miracleshttps://www.blogger.com/profile/08650111958186979950noreply@blogger.com