tag:blogger.com,1999:blog-7668050648919046122.post6070522394786707651..comments2023-10-20T07:13:22.206-04:00Comments on Waiting for Happy: Answers?boltefamilyhttp://www.blogger.com/profile/09178547489939649432noreply@blogger.comBlogger39125tag:blogger.com,1999:blog-7668050648919046122.post-4754076572159661852009-07-16T09:28:28.922-04:002009-07-16T09:28:28.922-04:00First, believe the report of the Lord! Second, it...First, believe the report of the Lord! Second, it is great to pray for Hope's healing while asking the Lord for His will to be done. "Ask and you shall receive."<br /><br />Blessings to you and your family!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-33962464470530206992009-07-13T17:07:20.729-04:002009-07-13T17:07:20.729-04:00Came over today to see how you, your family, and o...Came over today to see how you, your family, and of course Hope were doing. <br /><br />I'm sure you guys are shocked but you have a very strong faith as evidenced by your great strength during all you have been through.<br /><br />Take care and keep the faith!<br /><br />AmberMichehttps://www.blogger.com/profile/03202104148225914041noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-68760952958930655092009-07-11T15:02:16.805-04:002009-07-11T15:02:16.805-04:00Prayers in Virginia. God Bless. Sherry McCormick...Prayers in Virginia. God Bless. Sherry McCormickSherry Mchttps://www.blogger.com/profile/00273783003802945828noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-25696797664768776962009-07-11T14:04:00.839-04:002009-07-11T14:04:00.839-04:00I'm sure that a diagnosis must be scary. Surel...I'm sure that a diagnosis must be scary. Surely there are different levels and if she is doing so well, maybe her experience with it won't be so bad as some others.<br /> I'm praying for you.<br /> Love LindsayLindsayhttps://www.blogger.com/profile/02732100851347489982noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-45698573236778212652009-07-11T07:22:00.678-04:002009-07-11T07:22:00.678-04:00Bit shocked to hear the DX. I'm thinking maybe...Bit shocked to hear the DX. I'm thinking maybe as other commenters have said...she has been healed, maybe not of EB, but of DEB or even just of the severity of it. Wow!<br /><br />A dandelion popped up the other day in the midst of our clover and I thought of sweet Asher.<br /><br />Praying for you guys.Angelahttps://www.blogger.com/profile/13418864118234870229noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-58268563010928217792009-07-11T00:35:09.197-04:002009-07-11T00:35:09.197-04:00I'm echoing the others, but it IS possible tha...I'm echoing the others, but it IS possible that between the testing and the results-- Hope was healed! She looks healthy and beautiful! God bless.Pennyhttps://www.blogger.com/profile/00571947128036699544noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-73685227118170268392009-07-11T00:27:44.587-04:002009-07-11T00:27:44.587-04:00praying she is healed, she such a cute and healthy...praying she is healed, she such a cute and healthy looking baby!!peghttps://www.blogger.com/profile/03914552377938807267noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-12364694504768863412009-07-10T11:29:29.187-04:002009-07-10T11:29:29.187-04:00You are her Mother. You know her better than any d...You are her Mother. You know her better than any doctor or diagnosis. Listen to the doctor's, but also follow your instincts. Lean on God when that yucky fear tries to creep in. He's good, all the time! I'll be praying for Hope.Avery Taleshttps://www.blogger.com/profile/00469458820417044297noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-10979954842104935872009-07-10T10:59:16.745-04:002009-07-10T10:59:16.745-04:00Kristy,
As I read what the tests have shown for sw...Kristy,<br />As I read what the tests have shown for sweet little Hope, a favorite verse came to my mind:<br /><br />so that your faith would not rest on the wisdom of men, but on the power of God. <br /><br />1 Cor. 2:5<br /><br />And so, I stand with you in claiming this verse for your baby daughter. While the wisdom of men is often a good and helpful thing, it is nothing in comparison to our mighty God's power and what He can do and accomplish as we keep our eyes on Him. <br /><br />Also, if you get a chance, take a look at my post today on my blog (July 10). It is not anything you don't already know, but I pray that as you read it, it will encourage your heart.<br /><br />Love,<br />SusieSusie (So Blessed)https://www.blogger.com/profile/03698938701424037004noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-6606413297942660092009-07-10T10:57:40.671-04:002009-07-10T10:57:40.671-04:00Don't let this bring you down Hope looks beaut...Don't let this bring you down Hope looks beautiful and will remain beautiful she is a special girl a true gift from God! You have a lot of support and many praying for your darling little girl you are a storng family from what I see you will all get thru this! We all must live each day to the fullest, so put your best foot forward and God will do the rest! <br /><br />God Bless you sweet Hope XOXOAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-82517580280243424902009-07-10T09:56:08.815-04:002009-07-10T09:56:08.815-04:00I know excatly how you feel... I had that same sen...I know excatly how you feel... I had that same sense of shock when they told me Addyson had DEB. I wish you could see my little princess in person!! I think you would definently feel a sense of relief! I will continue to pray for Hope. We had our second infection this week and it was a baby one and she is almost 1 year old! Keep your chin up!! I know that she will do AMAZING!!!<br /><br />TracyTracyhttps://www.blogger.com/profile/11582439260313847391noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-26662044838197511532009-07-10T09:20:59.735-04:002009-07-10T09:20:59.735-04:00Coming out of blurking to let you know I will cont...Coming out of blurking to let you know I will continue to pray for Hope - she is beautiful and perfectly formed in God's plan. <br /><br />All the best.<br /><br />Lauren in TXlaurenhttp://betchanfamily.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-18086556263427462002009-07-10T08:41:08.730-04:002009-07-10T08:41:08.730-04:00Seems like about now she has been healed, the biop...Seems like about now she has been healed, the biopsy was done weeks and weeks ago. Praying for you.Teresahttps://www.blogger.com/profile/12551981187712205340noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-44731565369240001542009-07-10T05:36:45.204-04:002009-07-10T05:36:45.204-04:00I personally think all prayers were answered .... ...I personally think all prayers were answered .... she has been healed. Continue to praise God for her healing - I would! We serve an Awesome God and sometimes this can be mind boggling. Miracles happen and we as humans sometimes find it hard to understand all. She is super gorgeous! Don't let satan steal your joy, forget the results darling: enjoy her. HugsMirnahttps://www.blogger.com/profile/06531407232458936726noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-83370074317345548342009-07-10T04:58:12.117-04:002009-07-10T04:58:12.117-04:00I am so sorry. I do not know anything about eb or...I am so sorry. I do not know anything about eb or deb. Hope is a beautiful little girl. She is a daughter, she is a sister. She is a miracle of God. EB is just a part of her, it does not define her. Praying for Hope and her wonderful family.<br /><br />Hugs,<br />LisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-31302608719154105522009-07-10T03:36:21.125-04:002009-07-10T03:36:21.125-04:00I am so sorry, truly, I am. I have read and watch...I am so sorry, truly, I am. I have read and watched so much about EB, before even starting to follow your blog... and I started following yours before Asher was born. Imagine my surprise - and distress - to hear that baby Hope might have EB. I will pray for you all for strength in this time, and also that Hope will astound the doctors by not blistering as they expect.<br />LWlesserweevilhttps://www.blogger.com/profile/00109055589386485566noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-57590092649948635672009-07-10T02:45:32.258-04:002009-07-10T02:45:32.258-04:00I found your blog from the String of Pearls websit...I found your blog from the String of Pearls website. I read and listened to your story tonight with my husband. <br /><br />I want you to know that I too am praying for baby Hope. As God continues to work in this situation and your life, I will pray that you have peace and encouragement.<br /><br />Your story of baby Issac touched me in many ways. First almost 11 years ago our first born was still born. That event has helped define who I am and has also helped me understand more of the heart of God the Father. <br /><br />Second baby Issac went to be with Jesus on my birthday, July 20th. I will remember you and your family when I celebrate my birthday. I will rejoice because Issac is one of the little ones I will think of in the arms of Jesus along with Josiah.<br /><br />My husband likes to say that heaven will be that much sweeter because we will already have a child there.<br /><br />Praying tonight for you and your family.Robinhttps://www.blogger.com/profile/03550830913527582356noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-9091660661339259852009-07-10T00:34:06.131-04:002009-07-10T00:34:06.131-04:00Praying for Hope....Praying for Hope....Teresa @ Grammy Girlfriendhttps://www.blogger.com/profile/05151128140345216126noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-30426392503438705732009-07-10T00:23:16.888-04:002009-07-10T00:23:16.888-04:00We join you in this prayer. I agree with Jennifer ...We join you in this prayer. I agree with Jennifer and Charity, she is healed, in Jesus' name. It may not have manifested yet, but it will. We are believing that for our daughter, too.Debbiehttps://www.blogger.com/profile/17030774681941279099noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-34398053844710784552009-07-09T22:49:35.287-04:002009-07-09T22:49:35.287-04:00Oh Kristy, I was so disheartened to read this abou...Oh Kristy, I was so disheartened to read this about Hope. I was truly praying that this would not be her diagnosis....but I am also encouraged. Because you are RIGHT! This does not define her--only God can do that. Your faith and trust is exactly where it should be--in Christ alone--and He is holding sweet Hope, and caring for her and her needs everyday. I will of course continue praying for her, and for you.Devinhttps://www.blogger.com/profile/00536576059551978920noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-89801376793373637292009-07-09T22:08:06.217-04:002009-07-09T22:08:06.217-04:00Amen...God is our ultimate doctor and Healer. Only...Amen...God is our ultimate doctor and Healer. Only HE can say what is true or not about little Hope.<br />It's like my husband...the doctors diagnosed him with lupus...but his blood tests continue to get better and better. I too have to remind myself that just b/c a doctor says "So and so has_____" it doesn't mean it's true. God is our only Truth!<br />I continue to pray for you all and am so thankful that Hope is doing so well and not "following suit" to typical EB patients.<br />Blessings to you!!Hilaryhttps://www.blogger.com/profile/08674531849813178724noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-49025233078749889742009-07-09T20:52:18.854-04:002009-07-09T20:52:18.854-04:00I just remembered something and went to make sure ...I just remembered something and went to make sure I was remembering corectly. This is a quote is from this web page <br /><br />http://www.debra.org/modules.php?op=modload&name=News&file=article&sid=18#27<br /><br />"Transient Bullous Dermatosis of the Newborn *(TBDN) appears to be a form of DDEB noted by blistering and skin fragility that appears from changes in the collagen VII gene. For reasons unknown the problem seems to correct itself during infancy."<br /><br />I pray that this is what Hope has!!!kdlibertyhttps://www.blogger.com/profile/08293165615405616709noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-55246411365968541322009-07-09T20:28:56.967-04:002009-07-09T20:28:56.967-04:00I am so sorry it turned out like this. I would tal...I am so sorry it turned out like this. I would talk to someone from the DEBRA foundation. They do reasearch as well as supporting families with EB. They may have more insight into what is going on. Remember EB shouldn't define who she is. Praying for Hope and your family. -KDkdlibertyhttps://www.blogger.com/profile/08293165615405616709noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-40369591014631799382009-07-09T19:48:41.164-04:002009-07-09T19:48:41.164-04:00I love you Kristy and you KNOW that you and Hope h...I love you Kristy and you KNOW that you and Hope have my heart. My prayers continue and I feel that her healing is already taking place inspite of the diagnosis. God is good all of the time and His eyes are on Hope.<br /><br />Love and Hugs, LaurieLaurie in Ca.https://www.blogger.com/profile/15599832324966859946noreply@blogger.comtag:blogger.com,1999:blog-7668050648919046122.post-9020587614597582042009-07-09T18:24:46.554-04:002009-07-09T18:24:46.554-04:00Keep doing as you are doing. You know how to hand...Keep doing as you are doing. You know how to handle her and care for her. Lots of hugs from CA!asplashofsunshinehttps://www.blogger.com/profile/13233116341478208473noreply@blogger.com