Thursday, June 25, 2009

Hope Happenings...






Well, we are finally settling in and getting used to having Hope here. We are a little less afraid to get out and about and are having fun playing dress up a little bit. We have found a couple of pairs of mittens that work nicely and it has given us a little more freedom in the wardrobe area so look out! We still have no new blisters to report and the old ones are nearly healed. We are praising God for this. We have NO idea what the future holds and the test results are still not in but we know that only God can explain what is going on here. We are trusting in Him and loving this little girl with everything we have.

She is definitely getting bigger and asserting herself more. She likes to be held and always loves to be the center of attention. Holding her in one arm while multitasking just will not do! Tonight she will be getting her first real bath and we are assuming she will dislike it because she hates sponge baths, but we will see. Today is her first day in her little swing and it gave mommy a full twenty minutes of time to upload some new photos. She is waking up now, so that is our update! Enjoy the pics!

7 comments:

siscaboo said...

She is so precious. Tori just got her first real bath last night. She loved it. But, she hated the sponge baths, too. Oh my goodness. My hormones are going crazy. I am sitting over here crying I am so happy for you. She is gorgeous!

The Whalen Family said...

Your family just touches and warms my heart!!!

Michelle said...

are you sure she has EB? her skin looks FABULOUS! and she's just one of the cutest little girls in the world. :-) congratulations on your beautiful little girl... i know i said that when she was born, but i'm sure it's a relief to have here here, alive, and really apparently thriving despite the diagnosis. with poor little Jonah, i expected that Hope would have a lot more blisters, but she looks "normal" to those of us who can't see under her clothes.

praying for all of you!

- michelle

MARGARETE said...

She is absolutely beautiful. Congratulations!

Mandy and Russel said...

Hello :) I found your blog through Patrice Williams blog and have been following Hope's story ever since. She is beautiful and I'm so glad to see that all of the prayers are working! My little girl was born just 3 days before Hope and just got her first "real" bath 2 nights ago. She HATED sponge baths and screamed the entire time but LOVED having a real bath!! I bet Hope will too! :) Good Luck :)
Mandy K.

Elisha said...

Just an idea ... but with my boys we swaddled them tightly in their little bath towel and put them in the tub like that... they loved it... when otherwise they would FREAK. And I just realized I may be a little late with this advice... but better late than never!

Mary Ellen said...

Awwww isnt she just beautiful