Friday, June 19, 2009

Never Giving Up Hope


Ok, so mysuper talented friend Ginger took this photo of Hope last weekend and made this super awesome print so I could give it to Howard for father's day as I have not been out shopping and I am SO in love with this sweet baby girl! Look at that little face! PRICELESS! (The adorable bow was made by Tia you can check out her other stuff here)

Anyway I just wanted to share another picture of the sweet little one you are praying for and I must say that so many of our prayers are being answered. Hope is still not showing any signs of new blistering and the old ones are healing nicely. She has not been spitting up much anymore and I am thinking that issue had more to do with my diet than her. I have also been overwhelmed by the number of you who want to help us in some tangible way.

I have to say that accepting help has always been hard for me but in the past few years I have learned that sometimes God sends people to bless us and that in turn blesses them. I have been on both ends and am so grateful for the help we have received. We are a one income family and with the arrival of Hope and her needs I have been worried about finances and getting her the things she needs, but EVERY single need has been taken care of as it arises, we have been blessed with some cloth diapering supplies, bandaging supplies, dinner, soft blankies, encouraging cards, and sweet gifts for Hope and I cannot wait for her to one day look back on the story of her baby days and see how LOVED she is. Thank you all for being the body of Christ. Thank you for being His hands and feet and for carrying us when we are simply too weary to carry ourselves. Thank you. You have lifted our spirits more than you could know. Our hope endures! (literally and figuratively!)

"But as for me, I watch in hope for the LORD, I wait for God my Savior; my God will hear me. " Micah 7:7

18 comments:

Melanie said...

So sweet! I saw the influx of advice you got...who loves to give advice more than moms! Glad the spitting up is gettting better(without meds!).

Rob and Amy said...

Oh my goodness. Love, sweet Love!!!!

The Whalen Family said...

I am so glad to hear that she is doing better! The picture is absolutely precious!

momeeof3 said...

She is beautiful...That IS a PRICELESS picture!

Jenn said...

She is so precious. I am so glad to hear she is doing well!

Kelly @ The Beauty of Sufficient Grace said...

What a gorgeous picture of beautiful Hope! I love it! Continuing in prayer for Hope and for you...all of you...

ShEiLa said...

darling photo.

thanks for sharing.

I, in addition to many others am grateful little Hope is doing well.

Toodles.

The Dortenzos said...

Beautiful!!

Kirsten said...

Absolutely precious!! It is the perfect Father's Day present. So glad to know that things are going well for you and Hope. I love this part of your journey - you deserve every minute of bliss she brings you!!

A said...

She is so beautiful! Keep those pictures coming!!! :)

Bec74 said...

AMAZING picture...I am so in LOVE with the name HOPE. I am praying for results to quickly come back...as a mom with a chid who had a brain tumor,I remember thoes long horrible weeks,after surgery. waiting for final results....we were inthe hospital when the results came cack benign!!! As the tears began to flow down ,I remember the sense of relief and the Thanks to God that went through my soul....I pray for QUICK results and for a long healthy life for one of the most precious babies I have ever seen...I am a newbie to your blog but have now read it back to front and have to tell you...you are one amazing woman!! Keep the faith and God speed!
I woul love to send a little something,if you are comfortable with it,if not I understand.
My email addres is larae74@sbcglobal.net,if you don't mind sending me your mailing address...if you do.i will not be offended at all!
Prayers

Kate said...

She is so beautiful! Glad to hear she is doing better! Praying for all of you!

Christa @ Quintooples said...

I am glad things are going a little more smoothly. :) The cloth diapering thing will be second nature to you very soon. I grew to love it, and it became one of my hobbies!!! Hope is a doll baby, and I will continue to pray for her. (and you too!)

2feetonearth1inthestars said...

I love love the photo of hope!! She's beautiful!! I love the graphic work done to it also!

PB and Jazz said...

Hi,

I wanted to let you know that I have been following your blog. One of my friends has a beautiful daughter who has EB. I went to her graduation party this evening. My friend said you can email her if you would like. If this appeals to you, please email me and I will get you her email. Her daughter has lived life to the fullest. She is a individual and syncronized skater. Email me if you would like to get in contact with the family.

Jason and Vanessa said...

That would be the perfect button for your blog!

Ang said...

Oh you have no idea how excited I was when I was able to FINALLY see your blog and read up on what had been going on!!!!! (I was the one that emailed you just so I could 'see' a picture of Hope!! I was killed when you had her and I couldn't even read or see what you had written. so for the time being I was able to get it to pull up thru Mozilla firefox . I'll take anything at this point. I am sure you already have all the congratulations but I just wanted to tell how happy I am for you and your family
!!!!!! God is so good!

mommymeezer said...

Hi Kristy - I forget about which post it was that you were asking about mittens with out harsh elastics. I was in Walmart looking at baby stuff and then it dawned on me...why not use baby socks on her hands.

At anyrate...you sound wonderful...I am so glad happiness fills your heart!