I am sorry it has taken me so long to update, it has been a whirlwind of a few days, but sweet Hope Amelia Bolte was born Monday June 1 at 2:22 pm. She was 6 lb and 13 ounces and is just beautiful. I will share pictures and stories of the day soon.
For now friends, I am coming to you again with a heart broken and full of fear. Her apgar scores after birth were 9 and 9. She is doing great, but it seems that she has developed some nasty blisters anywhere friction has happened on her skin, where her hospital bands were, where bandaids and tape have been her skin blisters and then is just raw. Her brother Isaac had these blisters and ultimately could not even be touched because he would blister.
We do not know anything yet and we are headed to see a specialist in Pittsburgh tomorrow. Please pray for our new girl. My heart aches to think she is in pain and my body is still broken from surgery, though I was discharged a day early and will be traveling to Pittsburgh tomorrow. We are exhausted and trying to recover and enjoy her all the while fighting the fear that something is once again wrong.
I am just reminding myself that God is indeed in control, that none of this is a surprise to Him and that he has good plans for our sweet Hope!
When the Melanoma gal moves to the Beach
5 years ago
164 comments:
Kristy,
So happy to hear your daughter has arrived safely. I will be praying that everything is going to be ok. Cograts!!
praying for you in New Jersey. May God's peace be felt in your hearts and know that your fellow beleivers are petitioning on sweet babies behalf~
I'm praying for you and your new daughter. Could she have Epidermolysis Bullosa?
Oh, I have been wanting to hear of your precious girl's birth! Praising God! :) Her name is beautiful. Welcome baby Hope. Praying for your trip and for Hope. Hoping you can get the help and answers you need. Hope your recovery goes well Kristy. I know how hard it is to travel with a sore tummy. Enjoy her snuggles and beauty!
~Praying~
Love Kathaleen
Praying for you and Baby Hope!
Praying for your sweet girl!!!
Congratulations on your new baby girl! I am thinking of and praying for all of you.
Amanda Martin
I am praying for you and your family from Toronto, Ontario. I wanted to let you know that it sounds as though your daughter has Epidermolysis bullosa, it is a condition where blisters form on the skin from even the slightest touch. Jonah Williams has the condition and you can read about it on his blog...williamsfamilyblog...patriceandmattwilliams,blogspot.com hope this helps..Praying for baby Hope!
I hope it is nothing serious and will keep Hope and your family in my prayers for the days to come. The blisters you mentioned reminded me of another blog I follow: www.patriceandmattwilliams.blogspot.com Their son has a rare skin condition that causes his skin to blister when friction happens. I thought I would give you their blog in case you need a resource. Best wishes and I am happy that your new addion is here.
Many blessings,
Allison
Yeah! Congrats on baby Hope!
Praying
trish
Oh, sweet Kristy. I am praying...on my knees, on my face praying. Rejoicing at the birth of sweet Hope Amelia...and praying for complete healing for both of you...
Congratulations on your newest little blessing! What a beautiful name too. I will keep you all in my prayers as you seek answers for the blisters.
Lisa
I am so sorry. I will be praying that things go well for Hope.
Praying for God's Peace and for answers for you and your precious Hope. May the Lord give you strength and Peace and may he hold the Bolte family in His everlasting arms. Have courage for the Lord has plans for Hope. I have been reading your blog for quite a while and was lead by the Lord to pray for you and your precious baby. I live in Ma. and am a pastor's wife. I am taking you and Hope to the throne of the Holy one and placing you at His feet. Praying for a miracle. In Christian love, Claire
"Congratulations" Bolte family on the arrival of baby Hope Amelia. ~Darlene
http://patriceandmattwilliams.blogspot.com
Please check out their blog. Their son is a baby and has EB - which sounds a LOT like what your daughter has.
They also lost a son at birth from something similar.
You are in my prayers!!
Congrats on the new blessing! Does she have EB? IF so see this blog.
http://patriceandmattwilliams.blogspot.com/
Praying for baby Hope!
Hi!
I have been checking your blog everyday to see when your sweet baby girl would arrive-yay! she's here! Congratulations :)
I probably normally wouldn't post but the way you explained Hope's "problems" made me think of another blog I read-you should check it out:
http://patriceandmattwilliams.blogspot.com/
It sounds just like it...good luck, I hope you can figure it out. You and your family will be in my prayers! :)
PRAYERS KRISTY!!!! Oh how scary! I am allergic to all adhesives, and break out in hives and blisters when I have a band-aid, or any adhesive. I am also allergic to latex.
I PRAY that's all it is. I hope you get some solid answers my friend. In the meantime I will be on my knees in prayer for your sweet little girl.
Praying for Sweet Little Hope. May God comfort, guide, and bless you during this wonderful yet fearful time.
With LOTS of Hope, Love, and Faith,
Lauren (21yr. old Congenital Heart Disease Survivor)
Hi!
I have been checking your blog daily to see when your little Angel would arrive-congratulations!
I am so sorry you are having to deal with these blisters but as soon as I read that, it reminded me of another blog that I read daily...you should check it out :)
http://patriceandmattwilliams.blogspot.com/
stay optimistic...you and your family are in my prayers :)
I didn't catch that you are monitoring the comments-sorry for the double post :) I just re-typed it (probably under my husband's name:Bill)
Hope the info I provided is helpful and you figure something out :)
Congratulations on your precious girl. I love her name. I will be hoping and praying for her health. Praying for peace for you and Howard during this time and for rest as your body is recovering while traveling.
I am not sure if you have heard of the Williams Family they lost a little boy Gabe at birth and have a four month old baby, Jonah. He has a skin disease (Epidermolysis Bullosa) that causes his skin to be extremely sensitive to touch. Not sure if there is any relation to Hope's skin issues but thought she may be a good resource and support for you. Their blog is http://patriceandmattwilliams.blogspot.com/
As Always
Sending Lots of Hugs and Prayers to your whole family
Rachel in PA
i love you, kristy, like a daughter. i am hurting for you and praying hard. love, jan
Congratulations and welcome to your new little blessing! I sure will be storming Heaven with prayer for her, for complete healing~bless her precious heart. Will also be praying for your wellness and complete healing...BELIEVE!
(((HUGS))) 'Ma~rella
praying for you now!! Please update as soon as you are able.
Congratulations!! Dear friend I pray peace over your heart and rest tonight! I pray that God's hands would be over your sweet girl--that HOPE would be in your heart as you travel! I pray that the doctors would be able to quickly and efficiently give you the answers you all need and desire and that God's planning would be in it all!! Ultimately I pray for an easy and small answer so that you can enjoy you sweet girl at HOME where I know you longed to be with her! Jer 29:11--for I know the plans I have for you declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future!!!
Praying for you.
I must direct you to the Williams Family blog. http://patriceandmattwilliams.blogspot.com/
It sounds like Hope might have a similar condition as their baby boy Jonah. Its called Epidermolysis Bullosa or EB for short. I have no basis for this other than it sounds similar. Congrats on your new baby girl. My prayers are with you all!
I have e-mailed you the link to a baby that has this. Please check it out. Her son Jonah has had these since he was born and diagnosed with EB. She might be able to help you. Know that I am praying for you all.
Oh my goodness, I am so sorry you are having to go through this! I'll be praying up a storm here in Texas for baby Hope that it's nothing serious.
Congratulations on your beautiful baby girl! I will be praying that God will guide the Drs in her treatment and that little Hope will be healed soon!
Praying for you, Kristy. Praying for your entire family. Kristy, I am so so so very sorry.
I've been following your blog for several months now. Congrats on the birth of your baby girl! I will pray for her as you try to find what is causing the blistering. Have they mentioned the possible diagnosis of Epidermolysis Bullosa (EB)? Not trying to alarm you, I was just wondering if EB is a possiblity. Praying for you still.
Kaleena from McNabb Land
Congratulations on this sweet bundle Kristy! I am so glad she is here! You are in my prayers!!!
I love her name! Praying hard for sweet Hope, and that answers can be found in Pittsburgh. I am sure she is beautiful.
I meant to add in my last comment that there is a beautiful little boy in NC with a skin condition that sounds similar to Hope. His name is Jonah.
Congratulations. I wait and pray to hear more. What a beautiful name. I can't wait to see pictures.
What a beautiful name for I'm sure a beautiful little girl. I ill continue to pray for you all in the days to come. I hope that you get good news and some comfort from your trip to Pittsburgh.
Praying for your sweet new babe!
Praying this will be nothing serious, can't wait to see your beautiful girl. Congrats on a good delivery!
are you familiar with Jonah's story? he has EB... i'll be praying that isn't what your sweet girl has though.
praying for peace, answers, successful treatment, and good health for your little blessing!
- michelle
Congratulations on her arrival and praying for healing and peace!
Praying for you and your sweet girl, Hope.
I will be praying.
Congratulations on the arrival of your sweet Hope.
And you will be in my prayers.
Oh Kristy,
It breaks my heart to hear the fear and pain in your words here for precious little Hope. I am praying my heart out right now for this to be a temporary problem, asking the Lord to heal her from head to toe. Pleading with Him to flood your heart with the peace that passes all understanding and give you sweet rest and healing tonight. I understand your fear my dear friend, I really do. I love you and will be praying all night and day tomorrow. Be still and know God is in control, no matter how hard it is to do.
Much Love and Many Hugs and Prayers, Laurie
Praying for you that God's hand is just upon the entire situation. So thrilled to hear that you used the name Hope! We are using it as a middle name for our impending arrival. The words hope and joy have such new meaning to me now, wouldn't you agree?
Trinity
Welcome, Hope! I am so happy to hear that she has arrived.
Looking forward to seeing pictures and hearing more about her arrival! This is also my birthday, and I'm thrilled to share it with her!
Please know that you are on my heart and in my prayers as you wait for answers about her blisters. Please keep us posted.
Liz in Michigan
I am praying for you and your family. I am praying that you baby girl will be fine and get some answer to the problem.
Congratulations. What a beautiful name. I will be praying for your daughter as well as for you as you recover from surgery.
God does have good plans, and His plans HAVE NOT CHANGED!
Congratulations on sweet Hope Amelia! PRAYING, PRAYING, AND MORE PRAYING. In His Name.
Oh Congratulations on your beautiful new baby girl! And I am so sorry that she has such severe skin problems that sound so ominous....I hope you are surrounded by people who can hug you and encourage you. I don't know what else to say. I am heart broken and full of fear and also hope with you.
Praying for you and your sweet Hope in Illinois.
Lets hope for something simple... like a latex allergy???
You do not need any BIG trials.
I am so happy that she is here... Congratulations Momma & Hope and all of the boys... Daddy included.
ToOdLeS.
CONGRATULATIONS! I am not sure why I find silly things like this, but I notice she was born at 2:22... isn't that Asher's birthdate? Lots of love and prayers coming your way! Give little Hope lots of smooches from her biggest fans in California!
Congratulations on Hope we can't wait for pictures and are keeping you in our prayers.
Have you visited this website about a family whose infant son has Epidermolysis Bullosa a skin condition that produces blisters from friction of the skin?
http://patriceandmattwilliams.blogspot.com/
Congratulations on your new addition! May God bless you with strength and surround you with loving help for both little Hope and her worried parents! God's grace goes with you in all of it... will continue to pray for you all. :-)
I am so so happy that your sweet baby Hope arrived safely. I will be keeping your family and precious daughter in my prayers. I am praying for the Lord to sustain you and strengthen you as you rest in Him during this time.
Sara
Congratulations! Thinking of you.
Praying my friend. I have been thinking about you tons!
I will be keeping you and your sweet daughter Hope Amelia in my prayers.
Oh sweetheart! My heart sinks for you and your family. I will be praying. Please keep me posted. Praise God for little girls! Congratulations on a safe birth, praying everything goes well and there is only good news for you.
I will pray for your sweet family! Congrats on the newest addition to your family..
Congratulations and my heart goes out to you... My best friends daughter had what sounds very similar when she was born and I cant remember the name of the disease she has that caused it... its a genetic disease that is fatal in boys... she is now 6 and is a normal, happy , healthy 6 year old girl. My Prayers are with your family and I cant wait to meet your newest blessing.
Congrats. on your sweet little girl. We are praying for your visit with the specialist tomorrow. How I am praying for your comfort from your body and in your heart. Will wait to hear. Praying for a safe trip also.
Kristy, you and your family are and will continue to be in my prayers.
What a beautiful name for your baby girl! Congratulations. You are in my prayers. ((hugs))
My prayers are with you and baby Hope!
Love and Hugs...
Oh nooooooooo, you've got to be kidding me, you guys have been through enough. I honestly can't believe you will have to go through another trial. Wow. We'll be praying for sweet Hope and for you. :(
You'll be in my prayers!
Kristy
I am absolutely praying.
Congratulations! What a beautiful beautiful name! I am so overwhelmed, I am trying to write this through tears, tears of happiness and relief for the two you. God will continue to be by your side as you travel to Pittsburgh, I am sorry that she has developed this problem,Hope is in my immediate prayers. Love her and please give her a gentle kiss from me. Even though we have never met you and your family and of course sweet Hope are in my heart. Don't forget to take care of yourself. Hope needs her Mama to be feeling well and strong.post When you can, as we will all be waiting for news. All my prayers to you.
I have been following your blog for sometime now (I can't remember how I stumbled upon it), but I just wanted to say that my prayers are with you and your family. May your baby girl stay strong and stay true to her beautiful name. Good luck in Pittsburgh.
I am praying for sweet Hope! Let us know when you can and take it as easy as you can. Take care of yourself!
My sweet friend, I will be praying for you all! I will be checking for updates1 Blessings, Faye
Congratulations! I'm praying for you and your sweet Hope!
I have been checking because I thought you were going to be induced on Monday. Will pray for all of you!
I have been checking because I thought you were going to be induced on Monday. Will pray for all of you!
Oh Kristy! Welcome to the world Miss Hope and Congrats to the boys and you and Howard! I'm hoping and praying with you for Hope's situation and pray especially for your physical body to withstand the traveling and the emotional turmoil. Love you!
I am praying!!
Your faith is amazing!! God will give you no more than you can handle. May you have save travels and find answers to the questions about baby Hope!!
Amy Robinson
C.O.L.E. Prayer Team
www.colesfoundation.com
I read this yesterday, but didn't have a chance to comment. Did want to tell you that you have all been on my mind since I read it. As my son was up pretty much all night, I was thinking of you every time I woke and praying for your sweet Hope. I LOVE the name, too. Beautiful. May God wrap his loving arms around you and may you feel the warmth of the prayers from so many who love you!
Kristy, I am praying for all of you and hope that baby Hope comes through this happy and healthy!!!! Reading that reminded me very quickly of Jonah Williams who was born a few months ago and has EB.
http://patriceandmattwilliams.blogspot.com/
Take care!!!
Congrats on baby Hope. I read your blog often but rarely comment. I am praying for you, your family and baby Hope! You have been through so many trials....
Love and prayers!
Alli
I'm here via Christa @ Quintooples...and just know we're praying!
http://abccarpenter.blogspot.com
Congratulations on the birth of Hope :) I'm sure you guys are scared especially given all you have been through. We will pray for you as you try and get some answers and enjoy your little girl.
Take care!
Oh, Kristy! I am just seeing this now...I happened on your FB page and saw something. I just wanted to say that I am so happy she is here safely, and that you will be in my constant prayers. You, and baby Hope. She is beautiful, and I know the Lord will take care of you both.
Kristy,
Congrats on the birth of Hope! Praying for her healing and yours.
Can't wait to see pictures.
Christine
Congrats on your baby girls safe arrival. Praying for sweet Hope Amelia and your quick recovery. God has great plans for you and your precious little girl.
P.S. Her room is adorable!!
lifting you and your baby girl up in prayer!
I am so elated to hear that Hope made it here safely. I am in prayer that she will be okay and that God would heal her body! I am hoping that she at worst has sensitive skin.
Cannot wait to see her sweet face.
Bless you all!
I also wanted to tell you that if I can do anything for you while you are in Pittsburgh, I am available & willing. Feel free to contact me.
praying, praying....and congrats!! can't wait to see pictures!
Kristy- What a beautiful name! I am so glad that she is finally in your arms. I am praying that your trip to pittsburgh reveals nothing serious and that all this is just a simple fix. I cant wait to see her precious face! Thinking of you guys always!!!
Hi Kristy,
I wanted to get in touch with you when I first heard of Hope, but didn't want to scare you or make you jump to any conclusions. However, reading through your comments, it looks like you must already know about little Jonah and Epidermolysis Bullosa.
First, it may not be this, so please don't let your mind go crazy worrying until you know. It could be many other things.
Second, if it is EB, don't let the doctors scare you into thinking it's a death sentence. There are many, many babies, kids, and ADULTS who live with EB every day. You CANNOT determine the severity of her case, just by looking at her the first few days of life. Special biopsies will have to be done and you probably won't know for sure her subtype for three weeks.
Thirdly, whether or not it's EB, I would love to be a support to you however I can. I have lost a son (Gabe - April 22, 2008) and am watching Jonah fight every day. Hope is a little fighter too, I'm sure!
Please let me know how I can help you. Email me at jonahawilliams@gmail.com if I can help you with anything.
I'm here for you.
(And I did not just find your blog yesterday when comments were left for me about Hope. Ironically enough, I found you somehow a long time ago when I was connected to you after the loss of Gabe. Funny how God does that, huh?)
Let me know how I can be Jesus' hands to you and your family.
In Him,
Patrice
i just wanted you to know that i am praying for you, and if there's anything i can do, please let me know...
with love and blessings,
angie smith
(audrey caroline's mommy)
I was going to tell you about Jonas site too but i have seen others already have.
God Bless you and your sweet family.
The name you picked for your daughter is just BEAUTIFUL!!
I was so thrilled to read your first words, and then my heart dropped. Several comments here have made reference to baby Jonah, and he was my first thought, as well. I pray that this is nothing serious and you are able to bring home a healthy and whole baby. Praying.
Kristy,
First let me say congratulations on your new baby girl! Please know that we are praying for you and your baby. May the Lord wrap his arms around you and bring you comfort and peace. Also that he will bring complete healing to baby Hope.
Blessings,
Karen
I'm so glad she is hear but heart broken to hear about her skin. I will be praying!
Vanessa
You know we have been praying!! All our love to all of you, and praying for Hope to have a speedy recovery from whatever this is!
Knowing that God is in control, but still praying for direction and peace at this time of uncertainty. May God have His hand upon you, ALL of you. Hope, her name is perfect!
We are sending prayers for your precious princess.
COLE Prayer Team - www.colesfoundation.com
www.caringbridge.org/visit/rileycook
Hugs of love, Andrea
Congratulations! Know that you are in our prayers along with many others.
Congrats on your daughter! I pray that you will feel God's arms around you and be filled with peace.
storming Heaven's gates for you this afternoon....
praying!
Praying for Hope and your family!
praying and hoping.
Congratulations on sweet baby Hope! I can't to see pictures. Please know that I'm praying for you and asking that God wrap His arms around you very tightly and heal little Hope.
oh we are praying for your sweet baby girl here in california.
Praying for your baby Hope! May God give you peace during this scary moment!
Dear Bolte family,
When one member of the family is going through something, you all are. You are all in my prayers. Congrats on your baby girl. I pray Gods peace, love and protection on Hope Amelia and on you all. God be with you during this time.
Oh my. I'll pray. Congrats on your daughter! I love her name.
We are praying for you in the North Georgia mountains. Lifting up your sweet baby girl to God for him to heal. Lifting up you and your husband to receive God's peace.
I am wondering if your baby may have the genetic skin disorder Epidermolysis Bullosa. It sounds like another baby I have been following. Here is the blog you may want to check it out:
http://patriceandmattwilliams.blogspot.com/
You are in my prayers.God bless you.
Sending lots of love to you! More importantly, sending our prayers for your family and precious girl up to The Great Physician.
Praying for you, humbly and ferverently that all will be well. You are a strong woman with a strong husband, and I know that you will be able to endure, whatever, God has planned....But, that won't stop me and all the others praying that all will be well with your gorgeous (I am sure she is, giggle) daughter.
I have been watching and waiting to hear that all is well. I am sorry to hear that you have to deal with the fear yet again. Have you ever read the William's family blog who just recently had a baby with an issue like this? Here is their link http://patriceandmattwilliams.blogspot.com/
Your baby daughter is in my prayers!
"If God brings to you it, God will bring you through it!"
Congrats on your beautiful little girl. I've been praying for you a lot this past week and still am. Since reading your post I have been praying a lot for little Hope Amelia. What a lovely name!!!
Beautifyl name I am sending prayers your way hoping everything turns out OK for your baby girl!
Summer in California
Congratulations on the arrival of your daughter!! I found your blog through MckMama, and I see others have suggested Jonah Williams' blog too. Your family is in our prayers!!
Praying that everything will be just fine with Hope. God bless!
Andrea from TN
Congrats on your sweet little girl! I'm praying that everything goes alright!
Kristy,
My thoughts and prayers continue to be with you, Hope and your whole family.
I am praying that everything goes well in Pittsburgh and that you all will get some answers.
I pray for complete and full healing, in the Name of Jesus! Lord, bring this precious baby girl to complete health.
Blessings to you all....
Arriving to your blog for the first time tonight. Amazed by your strength! Praying for your family.
In faith, I asked God for a miracle... that Hope Amelia Bolte will LIVE and be a walking testimony of his healing hand.
Praying for you and your family. Even it is EB I just wanted to let you know that there are levels of severity and praying if that's what it is it isn't severe. I have a severe skin condition myself and have worked with children with all kinds of skin conditions. Most of the EB children I've worked with weren't as severe as Jonah and manage quite well.
Praying for you and your new daughter. Travel safely tomorrow. I'm praying that all will be well.
Grandmaof6
I came to you via MckMama...I will begin praying for your family and wishing you good thoughts. Please keep us updated on Amelia's progress.
Praying for you in Columbus, OH. It sounds like Hope may have Epidermolysis Bullosa. Please check out patriceandmattwilliams.blogspot.com. I think you'd find you have a lot in common with Patrice--she may be a valuable resource!
God Bless!
We are praying for you and baby Hope in Texas.
Hugs and prayers,
Amanda
MCkMama sent me... prayin for you!
Congrats on your beautiful baby girl. I am praying for you and your sweet family.
Hey- I made my way here from "my charming kids". I am pregnant with my fourth child but am hoping it will be my second one to keep here. I have one son, also a Luke :-) who is 5. Our daughter, Sela, is in heaven. My third child was lost in a very early miscarriage but I'd already seen a heartbeat and was sold on him/her. I am halfway through with my fourth pregnancy with another son and can relate so much to what I have read here so far. You certainly have a gift for writing and I can relate to so much of your pain which I am not able to put into words quite so eloquently. You are in my prayers that your sweet baby girl is healthy and that you get things resolved and bring her home soon. May God wrap all of you in His loving arms. Praying in GA, Holly
i am praying on her behalf and hope to hear GREAT news VERY soon!
Congratulations on your precious baby girl. She and your whole family will be in our thoughts and prayers. I pray that God will give you comfort and peace during this time of uncertainty and that you will have answers very soon.
Praying for your precious Hope. I have a Hope too!
Praying for peace & wisdom!
Praying for peace & wisdom!
hopped over here from mckmama, but also a close friend of patrice williams. i am just so glad that the doctors will be able to help her so quickly and that she made it through labor without too much trauma. i will be praying for you and hope as you begin the process of learning more about her condition.
Praying for you in Jacksonville, FL.
Kristy, congrats! Praying for little Hope and of course for you! I trust it is just something small!
Lotsa hugs!
a friend of mine's nephew has the same thing. Theparents of the baby have a blog site www.patriceandmattwilliams.blogspot.com Their baby is only 3 months old but she has been through all of the turmoil. Maybe it would be nice for you to connect to another new mom.
Kristy, I was going to point you to my niece Patrice's blog, and then I saw so many comments left by others about it. And then I saw that Patrice herself left you a comment, so I see that you have it covered! When she offered you support and prayer, she meant it. You can count on her to help you through this, as she has accepted the support of others through their journeys with their sons Gabe and Jonah. She is anxious to pass along the same kind of support she's been so fortunate to have benefited from to others, so please get in touch with her if and when you feel ready! And please call on ANY of us for prayer and anything else that you need. The blogging community -- authors and readers alike -- is an amazing thing. I have been blessed through it, as well, as we've traveled this long road with Matt and Patrice. Our prayers are with you!
Praising God that she is here. Praying to God that she will be okay. And for your strength.
I came over from MckMama's blog. I too am learning, day by day to "praise the God who gives and takes away", as two of my kids are also in His loving arms. I remember well the sinking feeling in my gut after my daughter (our second to get sick and pass) was born and we waited to see if she would continue healthy. Be assured of our prayers.
Libby
Sending you many, many prayers from Toronto, Canada.
PLEASE CONSIDER EB. Check out patriceandmattwilliams.blogspot.com Their son Jonah was born with Epidermolysis Bullosa recently. Blessings on you.
Oh dear, I am sure you are so scared. I will keep your family in my thoughts and hope that there is a quick resolution to her blisters. Hugs from Wisconsin!
~Melinda
Praying, praying, praying for baby Hope and your whole family. You are all on my mind and heart.
Congrats on your new baby girl! I will keep her and you in my prayers.
May God bless you and your new daughter! May He protect you both and give you both peace. Praying for you!
Well, I heard about your blog/story from Stellan's mom's twittering and thought I would check your comments to see if anyone had mentioned Jonah's mom's blog and EB... I quickly noticed that about every other comment on this post directs you to Jonah's mother's wonderful blog...
You should definitely make the time to read about Jonah and Gabe!!!
Praying for your sweet family and precious new baby girl... and for physical healing for you as well...
Elaine in Lubbock, TX
We are praying for you in South Carolina. Praying for baby Hope to be healed. I pray for you to have the strength you need. Hugs.
Congratulations on your sweet Hope! You are in my prayers!
Oh Hope is a beautiful little baby girl! My mother in law is actually allergic to adhesive, so it may be that, which isn't a major thing. Hopefully all goes well! My best wishes for your family!
I'm praying for you and your family and I hope Hope will be alright.
By the way, she is gorgeous!
God bless you,
Corinne
Kristy,
Congratulations! Praise God that Hope Amelia is here - what a beautiful name!!! We are continually praying, praying, praying for peace and protection over baby Hope. You are all in God's hands and He will take good care of all of you. Enjoy your sweet miracle.
Praying for you all!!!!
GO HOPE!! I'm feeling in my gut that her EB wont be that severe. =D but who the heck am I? LOL .. I WILL be one of the many many folks prayin for ur family tho my dear. Take care of ur yourself!! I know us moms put the kids and hubs first.. but you need to be well to do that.
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