I am a 30ish year old mom of five precious boys and one sweet girl. Four of our children are here with us and two are in the arms of Jesus. Our sweet baby girl Hope was diagnosed with Dystrophic Epdermolysis Bullosa and our youngest son came to us through adoption, the Lord has shown us just how Faithful He is. We will continue to Journey and follow Him where ever He leads. We feel very blessed that God chose us to be the parents of each of our kids, and we look forward to what He has in store for us in foster care!
Praise God, Hope is 6 weeks old today. She is still doing well. No blisters, just a couple of marks on her skin from scratching herself or us scratching her accidentally. They are tiny and minor, they don't need any special care and heal within a few days. Please keep up the prayers. We know God is at work in her and will do mighty things with her life. We are praying for her healing and for God to be glorified in her story. I will try to post pictures this evening, she is getting so big and is as beautiful as ever. Her brothers are still enjoying her though for Luke the novelty has kind of worn off and he is anxious to do "big kid" things like fishing with daddy.
Hope smiled this week for the first time in response to me (I think). She is also starting to make cooing noises and is so alert. She is a great sleeper. She loves to be held ALL the time and still despises the car seat. We are hoping to take the kids this evening to Pymatuning to feed the fish and to Presque Isle tomorrow for Isaac's birthday. I will be sure to take photos and share some of our summer memories with you all! We are so blessed to have so many praying for us!
PS- I have read and continue to read Jonah Williams' blog. He is an amazing little guy! Thank you (literally hundreds of you) for emailing and commenting for me to stop by their blog!
As for information and advice, I welcome any information anyone has about EB as I am voraciously trying to learn as much as I can so I can be sure Hope gets the best care possible while we continue to pray for her healing. I know God has it all in control, and I am daily just trying to hand it over to Him each day because the fear and worry will consume me if I don't. For today, Hope is doing so great! She is a beauty and the light of our lives! We are so thankful to the Lord for blessing us with her!
Thank you again for supporting us. It lifts my spirits daily to come here and receive the encouragement you all pour out so generously. Words just cannot do justice to the gratitude I feel. Thank you! We love you!
Go ahead and mention my child, The one that died, you know. Don't worry about hurting me further. The depth of my pain doesn't show. Don't worry about making me cry. I'm already crying inside. Help me to heal by releasing The tears that I try to hide. I'm hurt when you just keep silent, Pretending she didn't exist. I'd rather you mention my child, Knowing that she has been missed. You asked me how I was doing. I say "pretty good" or "fine". But healing is something ongoing I feel it will take a lifetime. ~ Elizabeth Dent ~
"When I Lay My Isaac Down" - Carol Kent "The One Year Book of Hope" - Nancy Guthrie "Holding on to Hope" - Nancy Guthrie "Empty Cradle Broken Heart" - Deborah Davis "Waiting With Gabriel" - Amy Kuebelbeck "Streams in the Desert" - LB Cowman "It Takes a Parent" - Betsy Hart "I'll Hold You in Heaven" - Jack Hayford "Crazy Love" Francis Chan "Radical" David Platt